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S-201 — An Act respecting a national framework on sickle cell disease
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S-201
An Act respecting a national framework on sickle cell disease
15
In progress
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BILL S-201
An Act respecting a national framework on sickle cell disease
Last activity : At consideration in committee in the House of Commons
In progress
Senate · 1st2025-05-27Senate · 2nd2025-06-12Senate · 3rd2025-11-18Commons · 1st2025-12-11Commons · 2nd2026-06-16Commons · 3rdRoyal assent
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What it does, in plain language
- Requires the Minister of Health to develop a national framework on sickle cell disease (also called sickle cell anemia or drepanocytosis), a genetic red blood cell disorder.
- Calls for measures on training, education and diagnostic and treatment tools for health care professionals.
- Sets up a national research network to advance research, improve data collection and build a national sickle cell disease registry.
- Establishes evidence-based national standards for diagnosis and treatment, plus universal newborn screening and the sharing of results with affected individuals and organizations.
- Provides for public awareness campaigns and steps to promote blood donation across all segments of the population, so the blood supply is diverse enough for safe transfusions.
- Requires analysis of a tax credit for patients and caregivers, inclusion of the disease in eligibility for existing disability benefits, and a look at covering essential treatments under public drug plans.
- Obliges consultation with other relevant ministers, provincial and territorial governments, self-advocates, caregivers, medical and research communities and other experts.
- Sets deadlines: the framework must be tabled in Parliament within one year of the Act coming into force, published on the Health Canada website within 10 days, and followed by a progress report three years later.
🤖 AI-generated from the bill’s official text as introduced — may not reflect amendments adopted since.
Registered lobbying
15 communications · 3 organizations
as of Sep 10, 2026
the 10 most recent +
Vertex Pharmaceuticals (Canada) Inc.12Vertex Pharmaceuticals (Canada) Incorporated2Novo Nordisk Canada Inc.1
2026-07-29 · House of Commons
Vertex Pharmaceuticals (Canada) Incorporated
Met with : Kelly DeRidder — Member of Parliament
2026-06-04 · House of Commons
Vertex Pharmaceuticals (Canada) Inc.
Met with : Juanita Nathan — Member of Parliament
2026-06-04 · House of Commons
Vertex Pharmaceuticals (Canada) Incorporated
Met with : Juanita Nathan — Member of Parliament · Braveenan Pradeep — Legislative Assistant
2026-03-24 · House of Commons
Vertex Pharmaceuticals (Canada) Inc.
Met with : Dan Mazier — Member of Parliament
2026-03-24 · House of Commons
Novo Nordisk Canada Inc.
Met with : Michael Coteau — Member of Parliament
2026-03-10 · House of Commons
Vertex Pharmaceuticals (Canada) Inc.
Met with : Tom Kmiec — Member of Parliament
2026-03-10 · Senate of Canada
Vertex Pharmaceuticals (Canada) Inc.
Met with : Tony Ince — Senator
2026-03-10 · House of Commons
Vertex Pharmaceuticals (Canada) Inc.
Met with : Salma Zahid — Member of Parliament
2026-03-09 · House of Commons
Vertex Pharmaceuticals (Canada) Inc.
Met with : Judy Sgro — Member of Parliament
2026-03-09 · Health Canada (HC)
Vertex Pharmaceuticals (Canada) Inc.
Met with : Justine Frame — Policy Advisor
Communications reported to the Office of the Commissioner of Lobbying that name this bill. Lobbying is a lawful, publicly registered activity — this count is a fact, not a verdict. Only communications whose description names both the bill number and its title are counted, so the real total may be higher. Registry archive read on September 10, 2026; the Commissioner republishes it about monthly, and we refresh it by hand.
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